Executive Director

Executive Director Opportunity at Kennedy’s Disease Association

Lauber Community Partners has been exclusively engaged to conduct this search.

Lauber Community Partners is excited to lead an exclusive search for the first Executive Director of the Kennedy’s Disease Association (KDA). Since 2000, this volunteer-led organization has supported patients and families, advanced groundbreaking research, and built a global community rooted in compassion, education, and advocacy. Committed to maximizing the impact of every contribution, 87% of every dollar donated directly supports Kennedy’s Disease research, education, and patient support initiatives.

Why Work for Kennedy’s Disease Association?

As the Executive Director, you will have the unique opportunity to work remotely with a passionate volunteer team to grow KDA’s impact, strengthen philanthropic support, and help fund life-changing research in the pursuit of a cure. Your strategic vision and leadership will be pivotal in expanding our client’s mission. This role is perfect for a seasoned leader with a proven track record in philanthropic development, nonprofit operations, and a passion for supporting individuals and their families facing medical challenges.

What We Offer:

• Leadership Role: Provide strategic leadership in funding life-changing research
• Community Impact: Contribute to a mission-driven organization focused on making a tangible difference all over the world
• Professional Growth: Leverage your experience in nonprofit leadership to drive success and innovation
• Competitive salary and benefits package with remote work environment and limited travel

Ideal Candidate:

• Education: Advanced degree preferred
• Experience: 5+ years of senior leadership experience in the nonprofit sector
• Fundraising Success: Demonstrated success in expanding philanthropic partnerships and resources, including campaign management, developing and cultivating major donors, and grant writing
• Communication: Outstanding communication, relationship-building, and strategic leadership skills
• Financial Acumen: Strong ability to oversee complex budgets and revenue streams

If you are passionate about mission-centered work and have the experience and vision to lead the Kennedy’s Disease Association into the future, we invite you to apply for this exciting opportunity. Join us in making a lasting impact on the lives of those affected by Kennedy’s Disease!